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A road map for digital health care technology in MND

The COVID-19 pandemic has had an important impact on the development and adoption of digital technologies for remote health care. Many of these digital health technologies are here to stay, as they greatly benefit care, but also research settings. This is especially true for people living with MND, since travelling,...

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First participants enrolled in PHOENIX trial

Amylyx Pharmaceuticals, Inc. today announced that the first participants have been dosed in their PHOENIX trial. This is a global study evaluating the safety and efficacy of the compound ‘AMX0035’ in people with ALS. The Phase 3 trial will be conducted at approximately 65 sites in Europe and the U.S. TRICALS is very...

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ADORE trial enrolls first patient

The pharmaceutical company Ferrer has announced that the first patient has been enrolled in their ADORE (ALS Deceleration with ORal Edaravone) clinical trial. This Phase III trial will enrol about 300 patients across European countries. It will evaluate how effective and safe FNP122 (an oral formulation of edaravone...

centers
CHU Lille
The SLA/ALS Reference Center and other Motor Neuron Rare Diseases coordinates the medical pathway of patients with rare diseases, from diagnosis to treatment.
centers
CHU Gui de Chauliac, Montpellier
Our ALS center in Montpellier offers standard of care for patients with ALS or other motor neuron diseases. A multidisciplinary team is readily available to propose ttreatment options, preventive therapies, medical advice and to answer any questions regarding these diseases.
specialists
Florence Esselin
Neurologist
specialists
Orla Hardiman
Consultant Neurologist, Head of the Academic Unit of Neurology
centers
Trinity College Dublin
The National ALS service is co-located between the National Neuroscience Centre (Beaumont) and the Academic Unit of Neurology at Trinity College Dublin. The service provides multidisciplinary care to patients across Ireland, and engages in applied clinical research, along with Phase 1,2,3 and 4 clinical trials.
specialists
Veronique Danel Brunaud
Neurologist, Medical Coordinator of the ALS center
specialists
David Devon
Neurologist, Pharmacologist
specialists
Niamh Ní Óbáin
Clinical Trials Research Manager
specialists
Bianca Broere